About Our Fight

About two years ago, Illinois attempted to eliminate or restructure its program for children who are technology dependent and medically fragile.  It took two years, but we finally were able to get all issues resolved and a new waiver in place in January 2014.  

For information on the Medically Fragile Technology Dependent (MFTD) Waiver, a money saving program that keeps kids at home instead of in hospitals, please visit the About page or read the MFTD Waiver Facts.

See the Waiver Issues page or click below to view information on specific topics:

How to Truly Save Money in the MFTD Waiver

We understand and appreciate that Illinois is facing a fiscal crisis and needs to save money.  As families who participate in this program, we know where the inefficiencies are and how to save money in this program without affecting eligibility or services.  We have also developed creative strategies to minimize costs to the state based on novel programs in other states.  We believe we could save as much as $41,135,112 a year through a few simple strategies.  Read our revised Cost Savings document for more information.

  • Maximizing Third Party Liability Potential Savings:  $7,870,468 per year 
  • Adding Private Duty Nursing as an Essential Health Benefit Potential Savings:  $4,082,480 per year 
  • Other Potential Savings:  $29,182,164

Please watch the video below to see all the precious moments the MFTD Waiver has made possible.